OPH of the 5/11/18 meeting of the Joint Pediatric Advisory Committee and Endocrinologic and Metaboli
#achondroplasia #dwarfism #fgfr3
Bones That Fit
One of my very dear friends since kindergarten, Carly Machen, recently graduated with her BA in Media Production at the University of...
Younger Now | Dwarfism Awareness Month
“feels like I just woke up. like all this time I’ve been asleep. even though it’s not who I am. I’m not afraid of who I used to be.” 💕...
7 years
Seven years ago at this moment I was almost out of the operating room and on my way to recovery. I was only at the beginning of what was...
LPA Nationals 2017 | Denver, CO
July already?!?! 🙈 Last week was the Little People of America 60th National Conference in Denver! 💎 fun fact: the first LPA conference...
A Tuesday in Memphis
Today I took my annual trip to see my neurosurgeon, Dr. Boop at Semmes-Murphey in Memphis! Luckily, I've never had any major-concerning...
Three Years since The Baltimore Sun
It was three years ago that I was asked to share my experience with the PRECICE nails with The Baltimore Sun. The PRECICE nails...
Getting Dressed without the Stress!
It's been a little over five years since I lengthened my arms. Even though it's been my new normal for five years now I still catch...