

OPH of the 5/11/18 meeting of the Joint Pediatric Advisory Committee and Endocrinologic and Metaboli
#achondroplasia #dwarfism #fgfr3


Spring Clothing Haul 🌸
SPRING HAS SPRUNG and when a $20 off J.Crew card is involved you go shopping. I love J.Crew because they have all the staple pieces that...


Boots and Chances
Let the rain fall down and wake my dreams of owning a pair of Hunter boots! With bowed legs wearing boots is almost impossible. Being...


National Doctors Day 2018
In honor of National Doctors Day I'm sharing an interview Dr. Standard and I did for Growing Stronger's LPDocTalk program. We discussed...


CHANuary | New Year's Resolutions
One of my new year's resolutions is to write more. This month I'm taking January and making it my own. One thing I want to do is write...


Bones That Fit
One of my very dear friends since kindergarten, Carly Machen, recently graduated with her BA in Media Production at the University of...


Save-A-Limb 2017
Finally home from my "home away from home." It was a successful weekend for the Save-A-Limb Fund! Over $90,000 raised! All proceeds will...


Younger Now | Dwarfism Awareness Month
“feels like I just woke up. like all this time I’ve been asleep. even though it’s not who I am. I’m not afraid of who I used to be.” 💕...